Pediatric Pulmonary Hypertension Network (PPHNet) Informatics Registry
Recruiting now NCT02249923
Run by New York Medical College · for 1 Day day to 21 · All sexes
What this study is about
Patients are being asked to be in this research study because medical researchers hope that by gathering information about a large number of children with pulmonary hypertension over time, their understanding of the disease process will increase and lead to better treatment. Investigators believe that pulmonary hypertension in children is different than pulmonary hypertension in adults and this study will help us understand those differences.
Who can join (things the study team will check)
✅ You may be able to join if…
- The subject's age of onset of pulmonary hypertension must be prior to age 18 years
- The person providing consent must be able to read either Spanish or English.
- The subject (and/or parent/legal guardian) must be able to provide informed consent
🚫 You may not be able to join if…
- Diagnosed with pulmonary hypertension after age 18
- Refusal to sign informed consent
Where this trial is running
- Stanford University Medical Center, Palo Alto, California, United States
- University California San Francisco, San Francisco, California, United States
- Children's Hospital Colorado, Aurora, Colorado, United States
- Johns Hopkins All Children's Heart Institute, St. Petersburg, Florida, United States
- Johns Hopkins Children's Center, Baltimore, Maryland, United States
- Boston Children's Hospital, Boston, Massachusetts, United States
- Columbia University Medical Center, New York, New York, United States
- Maria Fareri Children's Hospital at WMC Health/Westchester Medical Center, New York, New York, United States
- Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio, United States
- Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, United States
- Vanderbilt University Medical Center, Nashville, Tennessee, United States
- Texas Children's, Houston, Texas, United States
+ 2 more sites.
Who to contact
Erika B Rosenzweig, MD · 914-493-6160 · Erika.BermanRosenzweig@wmchealth.org
It's completely normal to call and ask questions before deciding anything. Mention the study ID: NCT02249923.
Verify everything on the official ClinicalTrials.gov record. Page updated July 2026.