Hairy Cell Leukemia Patient Data Registry

What this study is about

The overall objective is to develop a clinical data registry that can be used to facilitate research with the ultimate goal of reducing the morbidity and/or mortality and improving the quality of life of patients diagnosed or living with hairy cell leukemia. With approximately 1,000 new cases of this rare disease identified in the US each year, HCL represents 2% of all cases of leukemia in adults. Considering the rarity of this chronic leukemia, the Hairy Cell Leukemia Foundation (HCLF), in partnership with investigators from its Centers of Excellence, seeks to develop a registry to help researchers identify new trends in outcomes, recognize the most effective treatments, discover previously unknown complications of the disease, and design clinical trials for new therapies.

Who can join (things the study team will check)

Inclusion: * Patients with classic hairy cell leukemia * Patients with the variant of hairy cell leukemia. Exclusion: * Children are excluded from the study, since Hairy Cell Leukemia wasn't described in children.…

Where this trial is running

• University of Miami/Soffer Clinical Research Center, Miami, Florida, United States
• Mount Sinai Medical Center of Florida, Miami Beach, Florida, United States
• Mayo Clinic, Rochester, Minnesota, United States
• University of Rochester /Wilmot Cancer Institute, Rochester, New York, United States
• Ohio State University Comprehensive Cancer Center, Columbus, Ohio, United States
• Peter MacCallum Cancer Center, Melbourne, Victoria, Australia
• BC Cancer, Part of the Provincial Health Services Authority, Vancouver, Britsh Columbia, Canada
• Cancer Care Manitoba, Winnipeg, Manitoba, Canada

Who to contact

Hairy Cell Leukemia Research Data Registry · 614-685-4296 · HCLRegistry@osumc.edu

It's completely normal to call and ask questions before deciding anything. Mention the study ID: NCT02560883.