World Bleeding Disorders Registry
Recruiting now NCT03327779
Run by World Federation of Hemophilia · for All ages · All sexes
What this study is about
The WBDR is an international observational disease registry of patients with hemophilia. It will provide a platform for a network of hemophilia treatment centres (HTCs) around the world to collect uniform and standardized patient data and guide clinical practice. With informed consent from the patient, the WBDR stores anonymous data about the person's disease, such as hemophilia type and severity, symptoms, and treatment.
Who can join (things the study team will check)
✅ You may be able to join if…
- Patients of participating Hemophilia Treatment Centres with Hemophilia A or B, or von Willebrand Disease
🚫 You may not be able to join if…
- none
Where this trial is running
- World Federation of Hemophilia, Montreal, Quebec, Canada
Who to contact
Donna Coffin, M.Sc. · +15148757944 · dcoffin@wfh.org
It's completely normal to call and ask questions before deciding anything. Mention the study ID: NCT03327779.
Verify everything on the official ClinicalTrials.gov record. Page updated July 2026.