Patient Reported Outcomes Burdens and Experiences - Phase 3
Recruiting now NCT03549858
Run by McMaster University · for All ages · All sexes
What this study is about
The PROBE Phase-3 study will collect data on patient reported outcomes, burdens, and experiences in patients living with hemophilia. The investigators will perform comparisons among countries, within country over time, within country against national normative data.
Who can join (things the study team will check)
✅ You may be able to join if…
- PWH will be recruited through national hemophilia patient organizations utilizing their existing membership rosters, social media outlets and meetings / events. The investigators are not proposing a pre-determined method of PWH recruitment. They will utilize the information acquired in the workshop and take-home project to inform best practice in recruitment methodology for the study. The investigators may consider requesting different countries test different PWH recruitment strategies to test reproducibility. In the future, the questionnaire might also be administered to patients with other chronic conditions.
🚫 You may not be able to join if…
- Disease severity and Age bands or age limits (e.g. ≥ Age 18) may be utilized to narrow the study population.
Where this trial is running
- McMaster University, Hamilton, Ontario, Canada
Who to contact
Mark Skinner · 202.253.8342 · mskinnerdc@gmail.com
It's completely normal to call and ask questions before deciding anything. Mention the study ID: NCT03549858.
Verify everything on the official ClinicalTrials.gov record. Page updated July 2026.
Beacon is an information tool, not medical advice. Whether a trial is right for you is a decision for you, your doctor, and the study team. Trial details come from the official registry, ClinicalTrials.gov, and may change — always confirm with the study team. Beacon collects no data about you: this page has no cookies, no accounts, and no tracking.