TSC Biosample Repository and Natural History Database
Recruiting now NCT05676099
Run by National Tuberous Sclerosis Association · for All ages · All sexes
What this study is about
The TSC Biosample Repository collects and stores samples of blood, DNA, and tissues that scientists can request to use in their research. The samples we collect are all linked to clinical data in the TSC Natural History Database. The TSC Natural History Database captures clinical data to document the impact of the disease on a person's health over his or her lifetime. This data may be collected retrospectively or prospectively.
Who can join (things the study team will check)
✅ You may be able to join if…
- Diagnosis of tuberous sclerosis complex or lymphangioleiomyomatosis (sporadic LAM).
Where this trial is running
- University of Alabama Birmingham, Birmingham, Alabama, United States
- Loma Linda University Children's Hospital, Loma Linda, California, United States
- University of California Los Angeles, Los Angeles, California, United States
- Jack & Julia Center for TSC, Oakland Children's Hospital and Research Center, Oakland, California, United States
- The Children's Hospital, Denver, Colorado, United States
- Nicklaus Children's Hospital, Miami, Florida, United States
- Chicago Comer Children's Hospital Neurogenetic Clinic, University of Chicago, Chicago, Illinois, United States
- University of Iowa Hospitals and Clinics, Iowa City, Iowa, United States
- TSC Alliance, Silver Spring, Maryland, United States
- Boston Children's Hospital, Boston, Massachusetts, United States
- Massachusetts General Hospital, Boston, Massachusetts, United States
- Minnesota Epilepsy Group, Roseville, Minnesota, United States
+ 14 more sites.
Who to contact
Elizabeth Cassidy, MPH · 301-562-9890 · ecassidy@tscalliance.org
It's completely normal to call and ask questions before deciding anything. Mention the study ID: NCT05676099.
Verify everything on the official ClinicalTrials.gov record. Page updated July 2026.